A note about my list of activities. Everything on the list is subject to my energy envelope. I find that I fill most of my days with low to moderate energy activities. But even on my best energy day, I can only tolerate up to eight moderate energy activities. If I add any of the higher energy activities, that number plunges dramatically.
Sometimes, I'll piggy-back high energy activities. I tolerate two high energy activities in one day better than I tolerate two high energy activities in separate days, especially if it's the next day. It's like serving my sentences concurrently rather than consecutively.
I have pain in my hips and neck always. Sometimes I have pain in my back. I get mild headaches a coupleof times a week. I get a substantial headache about once a month. My current level of pain is a steady three. On my worst days, it bumps up to a five. On a good day, for example right after my massage, it drops to a two.
I'm not quite sure how to quantify brain fog. My memory is completely unreliable, even if I have it written down on the calendar. I blurt out the wrong word several times during the course of the day. I have a hard time finding words, and sometimes my mind just goes completely blank, like a white board wiped clean. It takes me several uncomfortable seconds (10 or more) to retrieve my thought processes. Sometimes, if someone reminds me what I was talking about, I can pick up where I left off. Sometimes it's just gone, and I move on.
Did I leave anything out?
1 week ago
4 comments:
This is good, Shelli. Really helps to hear what others recognize in themselves as it often echos the rest of us with CFS/ME.
Yes, I can identify! I like the idea of piggybacking to 'serve a sentence concurrently'. Although I have to say I find doing that increases the length of payback. So with me it's not concurrent but becomes consecutive. We are all so much the same and all so different! Have a great day Shelli.
Your last 2 posts are so helpful! It's always interesting to see how other people categorise/ prioritise events and activities.
Sadly, I'm not too good at it! Perhaps it's because of my age- I want to try and keep up with my friends. I might take your idea 'piggybacking'!
I can relate to everything you are experiencing, Shelli. I just keep trying to focus on the positive so that I can cultivate more of that. And my teens have learned to laugh with me at my inane brainfog-speak! Or maybe it was they who taught me to laugh at it!
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