tag:blogger.com,1999:blog-3511035581566790017.post1071211119194306719..comments2023-10-18T05:55:49.042-07:00Comments on Living the CFS Life: XMRV Treatment: Month TwoShellihttp://www.blogger.com/profile/03068094486297918345noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-3511035581566790017.post-42833203232301412542011-04-27T10:32:44.868-07:002011-04-27T10:32:44.868-07:00Paul, I know there's a lot of controversy. Th...Paul, I know there's a lot of controversy. That's why I'm not recommending my course of action. But I'm glad I'm doing it. I am seeing improvements; we'll see if it continues. So happy for you that you got better! I continue to try alternate therapies to help with my symptoms.Shellihttps://www.blogger.com/profile/03068094486297918345noreply@blogger.comtag:blogger.com,1999:blog-3511035581566790017.post-43274349155798974602011-04-27T09:55:55.516-07:002011-04-27T09:55:55.516-07:00just saw a new study on medscape.com saying that X...just saw a new study on medscape.com saying that XMRV is not linked to CFS now - hmmmm...<br /><br />oh well, i pray for your health - i used to have CFS but i'm healthy now - went to a holistic doc that cured lots of CFS folkspaulhttp://musicbypaul.yolasite.com/noreply@blogger.comtag:blogger.com,1999:blog-3511035581566790017.post-22509891038442489262011-04-25T14:50:51.060-07:002011-04-25T14:50:51.060-07:00Thanks, Alison!
Judy, I'll check it out.
Kiw...Thanks, Alison!<br /><br />Judy, I'll check it out.<br /><br />Kiwi -- Thanks! I do pretty well up to 2,000 steps so far. And I try to do yoga every day. So far, so good!<br /><br />Terry -- welcome! I've just started using essential oils. Many oils have anti-fungal qualities. I've added it to my routine, because I know that candida overgrowth is a problem with CFS.Shellihttps://www.blogger.com/profile/03068094486297918345noreply@blogger.comtag:blogger.com,1999:blog-3511035581566790017.post-5363969972810644482011-04-25T05:28:13.777-07:002011-04-25T05:28:13.777-07:00Isn't it wonderful to be able to focus on some...Isn't it wonderful to be able to focus on something besides your illness? <br /><br />I have systemic candida, which can lead to many other diseases. I am finally feeling better and able to start thinking about writing about other thngs besides sickness.<br /><br />I am a new follower of this blog and hope to hear many new... "good things". TerryEat To Livehttps://www.blogger.com/profile/12851191468716916221noreply@blogger.comtag:blogger.com,1999:blog-3511035581566790017.post-26962351566563088632011-04-23T06:17:00.720-07:002011-04-23T06:17:00.720-07:00Hi great to read your blog,
A couple of the thing...Hi great to read your blog,<br /><br />A couple of the thing you wrote were things I have just started doing too so I thought I'd share what helps me.<br /><br />I bought a pedometer too, great things for self regulating activity boundaries. <br /><br />If i do 1500 or less steps a day I feel okay in the morning the next day when I wake, any more and the 'wake up' hangover gets worse. If I do 3000/day then I am really headed for a symptom flare. I find it hard to not accidentally take too many steps.<br /><br />I do gentle Pilates to help build muscles/flexibility, it also just makes me feel good about myself looking after myself. <br /><br />Good luck with your treatment plan I hope it works for you :)Xhttps://www.blogger.com/profile/07736967406360912646noreply@blogger.comtag:blogger.com,1999:blog-3511035581566790017.post-79262738085831566332011-04-21T10:09:15.945-07:002011-04-21T10:09:15.945-07:00I haven't been blogging lately (been busy at t...I haven't been blogging lately (been busy at the Women For Sobriety boards), but I peeked in to look for you because I was wondering how you are doing! Sounds good!!<br /><br />Have you heard of momwriters.com. Sue and I met there all those years ago through the email group!<br /><br />Hugs Shelley, JudyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3511035581566790017.post-14184251967904777012011-04-19T03:11:45.316-07:002011-04-19T03:11:45.316-07:00Ah, doing things spontaneously like unpacking and ...Ah, doing things spontaneously like unpacking and cleaning the sink. That's how I know I'm having a good day too. Thanks for the update, hope you have more good days :)Alisonhttps://www.blogger.com/profile/07064893477629124444noreply@blogger.comtag:blogger.com,1999:blog-3511035581566790017.post-44596461067976011742011-04-18T09:48:25.732-07:002011-04-18T09:48:25.732-07:00Thank you, Renee and Elaine! Elaine, I've had...Thank you, Renee and Elaine! Elaine, I've had no side effects at all. The dreams aren't really something new, it's something I've noticed with CFS on the days I don't sleep well.Shellihttps://www.blogger.com/profile/03068094486297918345noreply@blogger.comtag:blogger.com,1999:blog-3511035581566790017.post-53861455429315134412011-04-17T16:26:09.989-07:002011-04-17T16:26:09.989-07:00Shelli,
I'd been wondering how you were doing!...Shelli,<br />I'd been wondering how you were doing! It sounds like the report for now is positive. What good news. I was so concerned about the side effects of the meds... other than the dreams/nightmares, it sounds like you are doing great!<br /><br />Its so good to hear from you!<br /><br />God Bless.Elainehttps://www.blogger.com/profile/06922200217770835483noreply@blogger.comtag:blogger.com,1999:blog-3511035581566790017.post-76187962773414524682011-04-16T11:14:42.754-07:002011-04-16T11:14:42.754-07:00Thanks Shelli for sharing with us...I wonder if th...Thanks Shelli for sharing with us...I wonder if the vivid dreams will die down when more of the virus is gone? That is what has happened with me and Lyme. Once the Lyme and Bart were down in my body and die off was not so intense the dreams/nightmares went away. Wishing you the best here.Reneehttps://www.blogger.com/profile/07089685282700680525noreply@blogger.com