tag:blogger.com,1999:blog-3511035581566790017.post3976314991467510216..comments2023-10-18T05:55:49.042-07:00Comments on Living the CFS Life: ME/CFS Awareness: How CFS Affects MeShellihttp://www.blogger.com/profile/03068094486297918345noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-3511035581566790017.post-68255314644980781992009-05-12T10:07:00.000-07:002009-05-12T10:07:00.000-07:00ShelliOh, I hurt for you and I identify with what ...Shelli<br>Oh, I hurt for you and I identify with what you are saying here. I am so glad you are willing to share all you have on ME/CFS and like I said before it is helping me to do the same. I am sending out an email to my friends and family with a few places for them to go if they want to know what real people are doing to manage a real disease. You brought tearts to my eyes and memories I don't often look back on either.<br>Gentle hugs<br>ReneeReneehttp://www.blogger.com/profile/07089685282700680525noreply@blogger.comtag:blogger.com,1999:blog-3511035581566790017.post-79258064287772412692009-05-12T15:51:00.000-07:002009-05-12T15:51:00.000-07:00Shelli - I agree - it's too painful most of th...Shelli - <br><br>I agree - it's too painful most of the time to think of the old me and pointless to compare then and now since there's not much we can do about it.<br><br>I know I've never met you in person, but I can tell from what you write about your family that you are a GREAT mom! I felt a lot of guilt at the beginning, too, but over time, I realized that my family was far more accepting of the new me than I was. My kids didn't focus on what I couldn't do - to them, I was still Mom. I'm sure your kids feel the same way.<br><br>SueSue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-3511035581566790017.post-6841252119183120492009-05-13T01:34:00.000-07:002009-05-13T01:34:00.000-07:00The thing about being a parent is you only have to...The thing about being a parent is you only have to be good enough - and you are way good enough even with your limitations. I can tell that from the way you talk about your children.<br><br>This illness can't take your identity away.<br><br>I love what you said about your husband 'lovingly lowering his expectations'. I think that's something we all need to do for ourselves, lower our expectations - with love.<br><br>Thank you for a thought provoking post. Warm wishes across the water. . .Johttp://www.blogger.com/profile/14378437798741434260noreply@blogger.com