I met with my doctor yesterday, and I have to say, it went swimmingly! My labs show no toxicity, and he said we would have seen something already if there were a problem. I am tolerating the meds very well. He asked if I have noticed any changes yet. I told him that I have moments where I feel very good, but they evaporate pretty quickly. Before, I would have a very distinct energy envelope between mid-morning and early evening where I felt fairly good as long as I kept within my restrictions. This is different and unpredictable.
He said he noticed that I got up on the exam table easier than I did at my first visit. I was impressed that he had not only noticed but remembered. So often, you feel like a blank face on an assembly line, and you wonder if the doctor even looks up from your chart. I think he is becoming more and more interested and excited in our little experiment.
I can't say that my capacity for activity has necessarily increased, although I did spend almost two hours on my writing project the other day. I got rather caught up in my story and didn't even notice the time. I was pretty wiped out afterward, not surprisingly. But no crash the next day. I don't know, there may be some minute improvement, but it isn't big enough to quantify yet.
The doctor renewed my prescription and gave me two refills. I don't have to return for three months. By then, I should definitely know if the meds are helping at all. If not, I stop treatment. If so, we continue. Fair enough, right?
My mantra these days is "We'll see, we'll see."
5 days ago
8 comments:
Sounds promising. I don't understand it all yet but I would say you would need catching up time as well. It's good to see that you aren't having bad side affects either. Cherrie
It does sound promising! But you are so wise to be cautiously hopeful!
Judy
I'm so glad you have a doctor who you trust! I finally found a doctor I like who listens! My appointment with her was almost an hour AND she takes my insurance! It makes a world of a difference. Even if the doctor can't cure you, it's nice to have someone listen and have someone recognize how you're improving. (sometimes it's hard to notice little improvements in yourself, you know?) I hope things keep looking up for you. Don't lose faith!
:) Amanda
Glad you have such a good doctor! Thanks for keeping us posted. Three months seems like a long time to go without monitoring though, but, I guess the doctor knows best. Rooting for you :)
Thanks so much for keeping us posted. It sounds like things are going well... glad you are doing so well on the meds.
Hope and pray that you will have good results on the meds!
Blessings to you,
Elaine
Shelli, I'm so pleased that you have a doctor who's actively engaged in your healing! He sounds like quite a find. Hope the meds start to work some magic for you, but meanwhile, hang on to that "we'll see" mantra...
There's a yoga saying that we should let go of all expectations. Some would say, do what you think is right and let the consequence follow. Or you would say, "we'll see, we'll see". The focus is on the process, and less on the end result.
Once again, I am out of touch and far behind!! You probably get sick of hearing me say that each time (few and far between) that I visit! I just can't seem to find time lately to keep up with blogs consistently.
ANYWAY, I am glad to hear that so far, so good with the anti-retrovirals! It is always hard to determine changes with new meds since our illnesses are defined by constant changes. Sounds like your doctor is on the ball!
Glad to hear you are managing OK these days - I can't imagine how much the move probably took out of you!
Sue
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