First Stop

This is what I'm going to do when I get better:

http://dyingforchocolate.blogspot.com/2010/08/chocolate-salon-news-taste-tv.html

The Summer Of No!

I've noticed a pattern in my CFS life.  I avoid the hard "no."  This would be anything where someone else's needs are in conflict with my own. 

Say I'm determined to get to bed earlier, but my husband is enjoying my company as we sit together on the couch watching TV.  I love sitting on the couch with my husband watching TV.  So, I end up going to bed one or two hours later than I should have.

Or maybe one of the kids comes up to me and says, "Mom, can I _____?" (insert activity that requires me to drive them somewhere.)  I already have so much guilt over all the nos I've already said, so even if I'm tired, I'll probably say yes.

The hardest of all, now that summer is here, are the invitations.  Weekly swim parties.  A Fourth of July barbecue.  Family dinners.  I so badly want to say yes!  Maybe if I pace before and after?  I don't know.  The best thing is for me to Just Say No.  I may be able to tolerate a tiny bit of yes, if I limit it to one hour or less, once in awhile.  But I'm afraid I'm going to have to learn to embrace the hard "no."

So, here it is:  No, I cannot make family functions right now, unless it's a once in a lifetime event, like my in-laws 50th wedding anniversary.  Even that, I'm taking off early.  No, I can't make it to your party.  No, I can't drive you places.  No, I can't stay up any later.  No, I can't.

Embracing the Summer of No!

Determined to Do Nothing

I think I'm a smart girl.

I've had CFS for over three years. I know how to manage it, more or less. I know that I have to pace my activity; I know I need to incorporate rest every day.

Most days, I do pretty well. I have two scheduled rests during the day, one in the morning and one in the afternoon. I allow my body to determine the length of each rest period. It typically ranges from half an hour to two hours. It feels good, and I know it is good for me.

But ... there are simply some days when I become as rebellious as a two year old! I know I'm tired. I feel my eyes starting to itch. Maybe my eyelids are even drooping, and I'm fighting to keep them open. But I'm having so much fun! I am enjoying this day and don't want to miss a minute of it, let alone 30 to 120 minutes at a time. I'm an adult, for crying out loud! I want to stay up like a big girl.

Yes, I am an adult, and so I make the adult decision. I take my nap.

Gardening: CFS-Style

Every year as Spring approaches, I get a sudden inexplicable desire to garden. Not just any kind of gardening -- I want a summer vegetable garden, just like I remember from my childhood. I loved the baby carrots, peas, and beans. I loved fresh corn on the cob grown and harvested from my own backyard. I loved how the zucchini took over more than its assigned mound of dirt. The watermelon was the perfect epitome of summer. And what could be better than tiny cherry tomatoes, still warm from the sun, a juicy burst of flavor in my mouth? Summer has always been my favorite time of the year, and these are the flavors of summer.

I can't say that I was an accomplished gardener before CFS. In fact, we only had a successful garden twice. Once, about seven years ago, my family and I tackled the side yard that was overgrown with weeds, some taller than the kids. My husband turned over the dirt, and I added the soil conditioners. Each child chose their own plant to grow and tend. It was a phenomenal success! We had fresh, homemade zucchini bread for months. We repeated the experiment the following year. It became quite the source of pride for us. In fact, our wonderful little garden was still going strong the day we moved to our new home.

Then, there were the normal adjustments in a new house that took my attention away from gardening. Then, the front yard needed attention and landscaping. One year, we were able to get the weeds cleared away in the side yard, but we discovered it was too hot and too late in the season to do much else. And finally, CFS hit and hit hard.

And yet, the desire to garden never went away! It was on my list of things I used to love and couldn't do any more. I mourned it. Until this year, when I decided that I was going to have my garden, dang it! I just had to get a little creative.

So, here's my garden! A ceramic container with Patio cherry tomatoes (bred specifically to grow in a pot), basil, and sage. I have two water globes so I don't have to water every day. No hoeing, no weeding, no energy to expend. My CFS garden! I am so proud of myself! I drag my kids out to "look at my garden" every couple of days. I show them the little blossoms on my tomato plant. I point out the new growth on the herbs. The teenagers roll their eyes; the little ones help me refill the water globes. And I count down the days until I have those little cherry tomatoes, still warm from the sun, to pop into my mouth.

Sweet Things

Cute things my boys said the other day:

Gabriel, age 8, was pondering the other day and told me, "You know what's weird, Mom? Even though you have chronic fatigue and are really tired all the time, you're still really nice!"

Gavin, age 7, took in some bottles to recycle for Earth Day. As a reward, they gave him a coupon for a frosty at Wendy's. He told me he was going to bring in another bag of bottles to get a coupon for me -- "Because they have chocolate, and chocolate is good for your chronic fatigue!"

Oh, I love those boys!

The Results Are In

ATTENTION SHELLI -- Read this post the next time the time changes!!!

Throwing off my schedule is WAY better than getting myself into a sleep deficit!!!

Yesterday was awful! I felt miserable all day long. I certainly tired myself out by bedtime, but it didn't help me fall asleep any better. I definitely slept hard all night; I remember waking a few times, but I went right back to sleep afterward. I didn't wake up until 9:30 am today -- that was a full 12 hours (mildly interrupted) of sleep! And, I can still feel the deficit. I'm going to need to take it easy for awhile longer, probably through the weekend.

How I wish some of you could have been a fly on my wall at 6:30 am yesterday morning to buzz in my ear, "Don't do it, Shelli! No, don't!"

On the happy side: I had such a nice day with my kids yesterday! My 8 year old son was showing me how to be an Avatar -- he is so creative, I just laughed at his antics. My 17 year old daughter found a way to get me talking about when I was a teen. My 15 year old son came in my room right before bed (my bedtime is earlier than his, how funny is that?). He was in a hilarious mood, and I really enjoyed him.

AND -- I'm on my way to the spa in a couple of minutes! Full massage, salt scrub and body wrap. Once again, thank you to the world's best husband ever!!!

A Sunny Day

I got a phone call from my friend, Josie. My son had left his pillow at her house the last time he spent the night. She was taking her boys to the park right after school, and she suggested I meet her there to pick it up.

I rarely do things spontaneously -- even less often now that I have CFS. I knew my boys would love it if I did more than just pick up the pillow, so we actually got out to play.

My boys ran like banshees all over the park, laughing and playing with their friends. Josie and I had a nice chat while she pushed her baby in the swing. The sun was warm enough to coax me into taking my sweater off. It felt really, really good to just be outside for awhile.

So, my eyes are twitching right now (my "tell" that I'm overcooked), and my back is a little achy. I've been a little more under the weather than usual the last couple of weeks. I feel a zombie fog coming on. But, I don't think I regret it. Nope, not at all.