“Both abundance and lack [of abundance] exist simultaneously in our lives, as parallel realities. It is always our conscious choice which secret garden we will tend." - Sarah Ban Breathnach
Monday, August 23, 2010
The discovery of XMRV changed things for me. So, last week, I purchased health insurance for myself. As soon as I get my ID card, I'm going to meet with my doctor again. I will first ask for Klonopin and LDN, two drugs that have been known to be somewhat helpful for CFS. Then, I plan on getting tested for XMRV. If I come back X+, I will be requesting to be treated with the HIV drugs that work against XMRV.
I don't mind being a guinea pig. I don't want to wait for clinical trials. My life has been scraping the bottom for about a year now. This summer, I barely left the house. I can no longer go shopping, and driving any distance is difficult. I can't imagine that side effects from the anti-retrovirals could possibly be worse than what I am already living. I strongly suspect that it will help me, and I don't like the idea of waiting, allowing the retrovirus to continue to reproduce and gain a further stronghold in my body.
Of course, I'll let you all know what happens as it happens! In the meantime: Has anyone tried Klonopin and/or LDN for CFS? What have been your experiences?