“Both abundance and lack [of abundance] exist simultaneously in our lives, as parallel realities. It is always our conscious choice which secret garden we will tend." - Sarah Ban Breathnach

Sunday, October 16, 2011


I changed the name of my blog back to "Living the CFS Life."  So much for XMRV.  At least it has drawn attention -- and research dollars -- to our disease.  I am grateful for that.

I realize now why so many of the "old timers" didn't get involved in the uproar of XMRV.  They've been through this all before, perhaps many times.  The announcement -- THIS IS IT!  The euphoria, the soaring hope, leading inevitably to "Oops.  We were wrong."  I suppose I won't be so easily pulled in next time.

So, I join millions of others, still waiting, waiting, waiting.  While I wait, I will do what I can to pace and manage my disease to the best of my ability.  I am continuing anti-retroviral treatment because I have seen progress.  I'll continue as long as I progress.  Who knows why it is working or how.  Maybe it's just the fact that I moved out of a two-story house.  If I plateau, I'll stop.

Meanwhile, I'll keep doing what I've been doing the past five years now: Trying to embrace the joys of every day, tiny moments.