I changed the name of my blog back to "Living the CFS Life." So much for XMRV. At least it has drawn attention -- and research dollars -- to our disease. I am grateful for that.
I realize now why so many of the "old timers" didn't get involved in the uproar of XMRV. They've been through this all before, perhaps many times. The announcement -- THIS IS IT! The euphoria, the soaring hope, leading inevitably to "Oops. We were wrong." I suppose I won't be so easily pulled in next time.
So, I join millions of others, still waiting, waiting, waiting. While I wait, I will do what I can to pace and manage my disease to the best of my ability. I am continuing anti-retroviral treatment because I have seen progress. I'll continue as long as I progress. Who knows why it is working or how. Maybe it's just the fact that I moved out of a two-story house. If I plateau, I'll stop.
Meanwhile, I'll keep doing what I've been doing the past five years now: Trying to embrace the joys of every day, tiny moments.
Sunday, October 16, 2011
Posted by Shelli at 12:35 PM