“Both abundance and lack [of abundance] exist simultaneously in our lives, as parallel realities. It is always our conscious choice which secret garden we will tend." - Sarah Ban Breathnach
Thursday, December 16, 2010
My next steps are clear. I had decided on them before I sent my blood in for testing. I have an appointment on January 5th with an Infectious Diseases specialist. I am going to request to begin treatment with the AIDS drugs that have proven effective against XMRV.
I know the AIDS drugs have some serious side effects. I also know that people with CFS have had a really hard time getting on the drugs. It will be a challenge. And yet, I am not wavering.
I've passed the tipping point for me. My quality of life is so negligible that I am willing to try just about anything that offers hope for recovery. I am housebound. I miss out on important events with my family all the time; just yesterday, I was unable to go watch my son tie for 6th place in the school spelling bee. Side effects are not going to interrupt my life, because there just isn't that much to interrupt.
So, what about you? Where is your tipping point? Are you there yet? Would you take the drugs, side effects be damned, if you KNEW you would recover completely? Would you let your kids do it? Or would you wait for science to catch up and offer new, safer treatments?